Thanks to "anonymous" for opening the gap! In fact fear is present, it is undeniable, and it is not easy to manage. You should know that this is normal. If we did not feel anxiety about our ill children, that would not be normal. There is no miraculous solution to cope with this emotion. My way of handling it can perhaps help you. When anxiety shows up, I stop and I feel what is happening in me and I think: it is normal, just let it be. Sometimes I talk to it and say: "I know you, you just come to make my life more complicated. You have the right to do so, it's part of the " game ", but I won't let you any place, it is just for a moment and then you'll leave me, and let me continue my path".
I can tell you that in any case it works for me ... And it works also for the moments of depression or discouragement.
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A place to share and to express feelings, for parents of ill children
En français:
Introduction
The purpose of this blog is to offer to parents of children with a serious, chronic or disabling illness a place to express feelings and find support and comfort.
I don't wish to introduce any religious or spiritual connotation here but I hope that everyone will feel free to express their thoughts while respecting the beliefs of all participants.
I am the mother of a young man who passed away recently, after a 28 years battle against illness, but also, as he said himself, a rich and full life.
During his life I always felt the need for an official support group. I felt the lack of a sympathetic ear while looking for a place to express pain, doubts, hopes, and all the things that are part of the lives of parents of special children.
That is what I want to offer, hoping that your lives may become lighter from having shared difficulties with others who can hear you and understand you.
How to participate
It is easy! Scroll in the site and click on "comments" when you find a subject which interests you. If you just want to add something, write in the last subject's comments.
If what you express can be useful for others I shall make a new page for it, to open a discussion on the subject
Each of your comments will be read before being published.
If you want to message me in private, just type "personal message" in your comment. Easy!
Don't forget to read all the comments, some may be useful to you, or you might want to answer them.
Who am I?
Carol
I am a nurse, mother of two boys. The elder one passed away in August 2008 from a long illness.
I am a nurse, mother of two boys. The elder one passed away in August 2008 from a long illness.
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